I’ve seen multiple posts in my facebook feed related to Multiple Sclerosis awareness this weekend, which is wonderful and hopefully helps those living with it and to educate others who know someone effected, but may not fully understand the impacts of it.
I recently posted about my own struggle with autoimmune disease and while I may not look sick or in pain it’s a huge impact on my life as well as so many others.
I’m guilty of not taking this condition seriously in the past. Blaming my age, weight, even motherood for not being able to keep up with life. The exhaustion alone is enough to keep anyone in bed all day.
Unfortunately, I don’t have that option. My kids don’t understand, most days I don’t think DC even understands, so it’s my job to raise awareness here in our little bubble of the world.
Unfortunately, unless you are directly effected by an immune disease, I don’t think it’s possible to fully understand what living with it is like. Sadly, even doctors stuggle, in my experience, to treat the various ailments because no two people are identical and therefore no two treatments are the same.
Sometimes the disease goes undiagnosed, or misdiagnosed. If you’re lucky you get a plan of treatment that helps straight away, otherwise it could be years of trial and error … something I’ve come to know too well.
And don’t get me started on the Insurance company … I’m extremely fortunate to have a good insurance plan, but even so they dictate the order in which medication can be covered, which might be fine if this were a cookie cutter disease.
Best part? The implications of stress. So dealing with Doctors and Insurance, for me often adds to my pain and causes flair ups.
I’m not trying to go on a pity party picnic here, just hoping to help bring it all into perspective. So, be aware, but first and foremost be compassionate and understanding with those of us who suffer in silence, because the last thing we want is to be defined by our disease.